Due to the lateness of the hour, I won't write much tonight. Ashley has had a really rough evening. Tonight she was so hungry, and her stomach felt good enough, she wanted to eat some chicken nuggets from McDonald's. I was reluctant for her to eat them, but she hadn't eaten well all day long. At least that was something. As it turned out, it wasn't a good choice. Those chicken nuggets made her stomach awful sick. Her diarrhea flared up. She was sick to her stomach. It was awful! On top of that, she has been desperately tired all day long. Tonight, with all the digestive distress going on, she was even more fatigued, which made her emotional. She cried and cried and then apologized for crying. I encouraged her to take a bath. Hot baths always seem to relax her aches and pains a bit. She finally crawled into the tub. I read to her for a bit. That did help her to feel a little better. She also found out she could use the massager on her stomach to ease some of the pain. While we were reading scriptures, she laid on the couch with the massager rubbing her stomach and fell asleep for a bit.
I am afraid the tiredness isn't going to improve. Nancy was very up front with us today. Ashley's heart, as it continues to fail, will make her more and more tired. This is the new norm, and now we have to adjust to it. It means every day life is going to continue to get harder for our little angel. Right now, she is finding out walking around the house makes her out of breath. Sometimes walking to the bathroom is difficult. She feels so weak, on top of the fatigue. I am so grateful that she has had a little relief from the digestive problems. That is a huge blessing!! We will continue to pray that she will have to strength to keep moving forward.
I have so much more to write. But tonight, I won't get to. Ashley needs me now. Thanks again to everyone for everything!!
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